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August 28, 2013

“Faith is taking the first step, even when you don’t see the whole staircase.”
~ Martin Luther King, Jr.

We are still waiting. Still waiting to find out what our next step will be for our baby girl. We saw hematology last week. They are continuing to monitor her blood counts. There have been a couple of blips on that radar, if you will. Her red blood cell count continues to be low, and over the summer her neutrophil count dropped significantly. While the doctor said this could just be a fluke thing, it is something they are watching, just like everything else. There was more discussion of a bone marrow transplant if things progress any farther. On the other hand, if these crystal ball tests come back saying that this kind of anemia is expected and stable, hematology would even consider discharging us from their supervision. One less doctor…. Wouldn’t that be nice….

But we’re still waiting….

While we are waiting, we have been very busy. All three children are in the midst of their first full week of school. It is going wonderfully so far. All the summer preparations of therapy and scheduling staff for school support and communicating back and forth with teachers and staff is paying off. They are so supported and happy in their schools, that it more than makes up for the extra drive we are making to keep them there.

Troy is starting his first year of school with no autism therapist accompanying him. So far it seems to be going well. The teachers all know him, and have moved in to offer him any extra help he needs, but without suffocating him. I see more meltdowns at home, of course, but I would expect that of just about any child this time of year. He is handling himself. He is confident and independent. And he is happy. I am so proud of my little fourth grader.


Joyce is now a “grader!” She has started first grade with a team of helpers and loads of friends. She is already off to a great start. Her first day she was very “nervocited,” as she scripted to me. (Apparently this is a word that Rarity from My Little Pony made up. ) But by the time I picked her up, she was smiling from ear to ear. It truly helps that her teacher already knows her and has had the experience of teaching her older brother. The familiarity of the therapist accompanying her all day was certainly an added bonus. It’s all about providing the right supports with this girl, and she does so well.


And of course there’s my little preschooler, Mary. She is back to her fabulous school, and she just couldn’t be happier. Oh how I love her smile and her little dance as she walks through the doors. She is the big kid in her class this year, and she is really soaking it up, showing off what she can do. Matching colors, moving pictures, following directions – well we’re still working on that last one. 😉 She is amazing everyone with the amount of progress she has made over the summer.


But there are some new children in her class. Some of them were a bit nervous about their first day. I think Mary must have seen it, in her own way. She wanted to help. Her new friend was having a rough day. Mary quietly and purposefully reached her hand over and did this. This is what having faith is. Believing, despite everything the professional might tell you, despite all the gloomy forecasts and warnings the doctors give you, that if you can just take that first step, amazing things will happen.

(obviously, I’ve taken the liberty of cropping out the classmates face for her privacy, but wow.)

5 Comments leave one →
  1. August 28, 2013 5:25 pm

    Sounds like a great start!! I absolutely adore the last photo. Our kiddos are so much more aware of others than many of us have been led to believe! You have to frame this. 🙂

    • August 28, 2013 7:37 pm

      Thanks Lisa. The teacher sends me pictures of what they do each day. My heart just melted when I saw that last one! So much for that whole “lack of empathy” thing, eh? 😉 She didn’t look at her friend, she just offered her hand and the little girl stopped crying. So proud of my big girl.

  2. tgenc4rcd permalink
    August 28, 2013 10:46 pm

    Reblogged this on TGen C4RCD.

  3. therocchronicles permalink
    August 30, 2013 5:06 am

    what a great start to school! That photo–precious!

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